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Adele Smolansky; Age 15
Aug 19th, 2017

I Love Lara
I love Lara. When I was seven years old and was told that I was going to have a baby sister, I didn't expect this to happen. I expected a little girl who I would play dolls with, play cards with, watch scary movies together, do our nails together, and talk about cute boys. Coming to terms with the fact that we wouldn't be able to do any of those activities as planned was hard, and took me some time to fully adjust. But when I was upset, I would still go to Lara and put her on my lap and just talk to her. She is a great listener; laughs at my jokes and pathetic problems and smiles at my achievements. She always looks so happy to see me when I sit down next to her to read her a book or join her in playing with her toys. She seems to be willing to do whatever is necessary so that I sit beside her.

My brother and I have been through all of this together. When our parents found out that our sister had Rett Syndrome, we were scared together. When Lara was taken to the hospital after having a bad allergic reaction, my brother and I sat on the floor waiting, together. Through all the hard times I had him by my side and he was the only other person who understood what I was going through.